I hope you are all okay, I would just like to start by saying thank you as I have reached 1500 views across 23 countries. I am so appreciative of all the support I have been given so far, I am so thankful to anyone who is joining me on my journey and this is only the start.
I thought I would give you an idea of what it is like to spend 24 hours in my shoes on a normal day, I am going to use yesterday as an example as there was another hospital visit via ambulance last night.
So on an average week day I will typically get up for work at 7:30 and dependant on a good or bad day i may spend another 15 minutes in bed just to get myself to a point where I am ready to get out of bed. I will then choose what to wear for work, again if it is a bad pain day then I will choose a sports bra and stretchy clothing such as a comfy jumper and leggings.
I work doing admin and sales for a company that manufactures Aluminium Honeycomb, when I started I wasn’t even sure what Aluminium Honeycomb was or what it was used for. I am so lucky as I am surrounded by the most supportive people my team are all lovely and always willing to help me. My job has also helped with some aspects of my conditions, for example my depression is less severe now that I have something to take my mind off it during the day. Being able to sit down all day also means I don’t have to put as much strain on my body, I have a chair that is better for my back and hips and a special keyboard to help my wrists and fingers.
So I work from 9 until 5:30pm and then I will go home either to my mums house or to my Ross’ house, from there I shower and then either read and play with my cat Oli or I’ll watch TV. Last night whilst watching TV at ross’ one thing led to another as it does and then Ross noticed that the left side of my chest from top of my ribs to bottom was really swollen. Over in the UK we have a service called NHS direct which is a number you can call for urgent medical advice or assistance.
So Ross made me phone them…this then lead to the lady phoning me an emergency ambulance, the paramedics arrived within about 5 minutes I was then attached to everything as per usual, heart monitor, had an ECG, and blood pressure tested. My heart rate was 150 ish so that meant that I then got taken back into the resus unit of the hospital. The usual was done to me again, another ECG and more blood tests. I was also tested for an infection as my temperature was 40.1 not sure where the infection would have been but knowing my luck and how weird my body is it probably would have been in my arse!!
I was in hospital for around 5 hours in the end and sent home with more codeine knowing that today I was then being fitted with my 24 hour heart monitor, this will then be sent to the cardiology department for them to review.
I think it’s safe to say that I am absolutely knackered now and beyond fed up with going into hospital only to be sent home no further forward than I was before. I have costochondritis and that is likely to be the cause of the swelling, I wouldn’t even want my worst enemy to have this as it’s painful, makes you feel sick and feels just awful when you move or breath.
I will insert pictures below just in case anyone thinks they have any symptoms that sound the same as what I have listed and also just so that you can see what these things are like. Anyway I am off to fall into a codeine filled nap and try not to get tangled in my heart monitor wires…wish me luck!
Signing off for now,