Chronic Illness vs Hobbies 

Hi everyone, 
I hope you are all doing well. I also apologise that this one is up a little later than usual but I have spent the past few days recovering from concussion. 

I’m going to start off with some good news that I read this week, Fibromyalgia is now becoming a step closer to being seen as a long term disability…now to someone that does not have Fibromyalgia you would probably think why is ’tis a good thing? Well it means that people that have this are finally beating the doctors views that it is not that bad and that it is easy to live with. 

Anyway this weeks blog is going to be about how hobbies and work actually help me with all of this, I still work full time and am currently in a job that I love, I enjoy going to work everyday, this is so important because it means that I am able to put my medical problems to the back if mind and get on with a days work. If I were to sit at home everyday my depression and anxiety would have come on a lot quicker and would be a lot worse this would also be the case if I didn’t have Ross to look after me as well. 

I ave tried to make sure that I have kept on with my love of reading, from a young age me and my sister have always read books and I still see it as one of the most enjoyable things it do, you can lose yourself to your imagination and this means that I can put the pain to the back of my mind as much as possible. I currently have over 40 unread books sat on a shelf that I am slowly working my way through, I keep telling Ross that I won’t buy anymore books then gain new ones pretty much every month…

It is really important to try and keep in contact with your friends, and trust me being diagnosed with all of these medical problems really shows who your real friends are and who will just drop you because you can’t make plans or never feel up to going out. I am thankful that I do still have some of the most incredible people around me it makes dealing with all of this a whole lot easier…I feel so alone with all of this most of the time as there is not enough awareness out there not many people are willing to learn about it either so it can make you feel really alone. 

My favourite hobby of all however is sleeping…with chronic fatigue it is all about balance and pacing yourself, you need enough rest but also need to remain active, this is hard for a lot of people and these conditions will consume you if you do not have the willpower to fight against them. It is really hard to keep your willpower up I think I have a weekly breakdown where I just can’t face slapping a smile on and getting on with it.

That is my personal motto though….no matter how hard life hits you, slap a smile on and power through, it won’t always be this bad. 

I am going to sign off here, I’m off to see rob Beckett perform tonight and my fingers are hurting from all this time (the joys of being a spoonie) I’m gonna leave a picture of me below just so that you can Actually put a face to the writing!

Signing off for now
Scarlett x 

One thought on “Chronic Illness vs Hobbies 

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